Thursday, May 21, 2009

Day 42--May 21, 2009

It has been hard to truly settle in at home over the past 30 hours or so. It all seems too much like the dream that I have been wishing would come true for the past 6 weeks. It has been wonderful!

Honestly it has been like bringing a new born home. If you could have edited Katie’s story and removed everything between 3:00 on April the 9th, and 4:00 on May 20th, I think it would have been just like this. She does not look like a child born with a life threatening birth defect and she does not act like a child born with a life threatening defect. Also since she is still below her birth weight she does not have the heft like a normal 6 week old would have acquired. It is almost like she has started over.
We may actually even remember and celebrate her “coming home” day, as it was far more joyous than her birthday.

We have the normal feedings every two and a half to three hours, diaper changing, burping, and of course the occasional eruption from one end or the other. It has been great! Our only problem is juggling all of these prescriptions. Some have to be given every four hours, some every 6, others twice a day, and even others only once per day.

Anyone who has seen my office knows and understands that I have a filing system that no one but me comprehends. I know about what pile a form is in and at about what depth most of the time. Pfffffghhhhh who needs file folders? However in this situation I, yes the organizationally challenged Agriculture Teacher, have made a spreadsheet. GASP! I’ll give you a minute to catch your breath.

This wonderful piece of managerial documentation will now enable us to keep up with when feedings were, how much she ate, what medications she was given and in what amounts. There is even a column for diapers, M=messy and W=wet! Whooda thunkit?

We are supposed to keep up with the feedings and the diapers for the doctor any way. This will help us remember the medications as well.

We would like to say thanks for all of you courteous followers of Katie’s Story. We have had a very quiet and peaceful day which we have used to acclimate Katie to home as well as ourselves.

Katie has been eating well considering that just 5 days ago we were begging her to eat 30-35ccs. Today she has been eating 45-60ccs every feeding. She has begun to look forward to the bottle. We give her all she will take in hopes of facilitating her continued growth.

It is just as important for Christians to desire grow in Christ as well. Just like Katie, we cannot eat just one big meal and expect to flourish. We must desire to learn God’s word, and be in His will so that we may grow in our faith and spiritualism.

1st Peter 2:2 reminds us the we should “As newborn babes, desire the sincere milk of the word, that ye may grow thereby.” We cannot expect to feel the fullness of our souls or the continual warmth of God’s presence if we let our “stomachs” get empty. Just as Katie has begun to cry and weep for her fill of milk, we to should have an overwhelming desire to “digest” some of God’s word on a regular basis.

God Bless!
Andy and Beth

1 comment:

  1. We are glad to hear you are home! We have a 3.5 yr old daughter who was born with an undiagnosed R-CDH. She was also in the NICU for one day short of 6 weeks. We are proud supporters of Parker's House and her picture hangs there. Best of luck to you as you enjoy your family together at home.

    Kristyn Mostek
    Leah Claire 8.11.05 R-CDH